Monday, August 3, 2015

Update 8.3.15



Look! Look at our sweet girl with only an NG tube on her face! No more oxygen! Hooray!!

They've taken Helena off all her oxygen so she's breathing 100% on her own, just room air. They've also removed her arterial line, and taken her off all her IV's (they're switching a bunch of her meds to get them orally). 

We had a great visit today where we met with speech therapy to work her sucking reflexes. Because she's never actually eaten through her mouth she's lost some of that, but as you can see with her using her pacifier, she's getting it back. They tried to feed her with a bottle and she wasn't a fan, but they're hoping to get her to take food from a bottle in the next few days and get her off the NG tube. We did a lot of practicing with her pacifier, and she seemed to catch on to that pretty quickly so hopefully she does the same with the bottle. They've also upped the amount of food she's getting to full feeds, which she seems to enjoy. 

Even off the oxygen all her numbers are looking good, and she's doing everything she needs to. 

I also got to get some quality snuggling in, which is always wonderful. 

Helena is doing great, and meeting every challenge thrown at her so far. Thank you all for your prayers and support, it's all working!

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